Frequently Asked Questions & Resources
The Jeanne A. Carpenter Epilepsy Legal Defense Fund
The Jeanne A. Carpenter Epilepsy Legal Defense Fund has been created to help people with epilepsy fight discrimination.
Travel Assistance Fund
The J. Kiffin Penry Patient Travel Assistance Fund is allocated by the Epilepsy Foundation and provides reimbursement of travel expenses for eligible patients and their families who have had to travel more than 50 miles from their home to received FDA-approved medical care and/or treatment for their epilepsy/seizure disorder, but lack adequate financial resources to meet the cost of this travel without bearing financial hardship.
Eligibility requirements include:
- Traveling more than 50 miles to receive FDA-approved medical care and/or treatment for epilepsy/seizures.
- Applicants must be a United States citizen and must reside in the United States, Puerto Rico or US Virgin Islands.
- Applicants must attempt to exhaust at least three other funding sources within the county and state where the patient lives in addition to their insurance company.
- Applicants must provide justification for obtaining medical treatment/services more than 50 miles outside of the patient’s home for their epilepsy/seizures. Official documentation from the patient’s doctor, medical practitioner, or facility where treatment/services will be provided is required and must include the reason(s) for treatment, treatments received, and date(s) of treatment.
Note: Applicants may apply prior to travel for pre-approval, but must provide original receipts for final application consideration and funds disbursement.
College Scholarships for Those With Epilepsy
The EverSpark Interactive JJ Hennessey Honorary Epilepsy Scholarship grants a $1,000 scholarship awarded to one high-achieving student with epilepsy.
The UCB Family Epilepsy Scholarship Program offers educational scholarships up to
$5,000 to those with epilepsy, family members and caregivers who demonstrate
academic and personal achievement.
Social Security Disability Benefits
This article explains the requirements for qualifying for Social Security disability benefits if you have epilepsy.