In Memoriam

We remember our family members, friends, and loved ones who have been lost to epilepsy.

If you have lost a loved one to SUDEP or another epilepsy-related cause, we offer you our deepest condolences. We are here for you during this confusing and tragic time, and can help identify resources and support so that you do not have to face this alone.

The Epilepsy Foundation of Colorado & Wyoming can support you and your family with:

  • Accurate information regarding SUDEP and other causes of epilepsy-related death.
  • Individual or family support from a bereavement support facilitator familiar with SUDEP.
  • Online Bereavement Support Group designed to help families connect with others who have lost a loved one to epilepsy in a safe and confidential environment.
  • A Remembrance Wall at our Walk to END EPILEPSY.
  • Advocacy as needed, including coordination and assistance with the death investigation process.
  • Access to and assistance in participating in SUDEP-related research opportunities.

The Epilepsy Foundation of America’s SUDEP Institute leads education and awareness efforts targeted to people living with epilepsy and their caregivers as well as medical professionals, including members of the death investigation team. Call 800-332-1000 and press 1 or email sudep@efa.org to learn more about our services. Learn more about these programs and how you can become involved. 

In Remembrance

Tyler Stevenson

MAY 21, 1990 – JANUARY 23, 2011

Our 20-year old son, Tyler, passed away from SUDEP (Sudden Unexpected Death in Epilepsy) and we found ourselves in the unimaginable situation having to communicate with the coroner’s office, take care of the funeral arrangements, the life insurance, remove his name from junk mailing lists, place notices with credit bureau agencies, etc.

Read the Full Story

 

To share your memorial with us, please email caremanager@epilepsycolorado.org