EFCO kicks off National Epilepsy Awareness Month with the support of Colorado Governor John Hickenlooper, Denver Mayor Michael Hancock, and Colorado Springs City Council President Keith King proclaiming November "Epilepsy Awareness Month"!
View Proclamations | More info about Epilepsy Awareness Month
By Warren Lammert, Chair, Epilepsy Foundation
Coach Jerry Kill of the University of Minnesota had a seizure on the sidelines of the Western Illinois game on Saturday afternoon. Seizures are scary and unpredictable but are also part of the routine for too many people who live with epilepsy. Coach Kill's team has been there before and knew how to respond. They stayed calm, stayed focused and stayed with Coach's game plan, going on to a 29-12 victory. We support Coach Kill and join with the Epilepsy Foundation of Minnesota in helping bring attention to some of the misconceptions about epilepsy mentioned in the media. Read More >
KUSA - Trevor Barron just made it to the Olympics in London as a race walker in 2012. On Sunday, 9NEWS Reporter Vida Urbonas spoke with Trevor to learn more about his journey. Seven years ago, he had brain surgery to take out a piece of his brain. Since then his seizures have stopped. This spring, he wanted to take some time off from race walking so he decided to run a marathon. In just ten weeks Barron trained for the Colfax Marathon. In the race, he came in fourth place overall. Barron ran the marathon in honor of the Epilepsy Foundation. Barron hopes his story will help others who are also going through challenges. "You can do amazing things and even achieve your goals with Epilepsy," said Barron. Strides for Epilepsy 5k race and community celebration is Sunday, June 9 from 8:30 p.m. to 12 p.m. at Denver's City Park.
DEA Delays Threaten to Hurt People Living with Seizures
The Epilepsy Foundation calls on the Drug Enforcement Administration (DEA) to revise its process for reviewing new treatments. The current method dampens innovation and lacks transparency for both consumers and industry.
Currently when a new treatment with abuse potential is approved by the Food and Drug Administration (FDA), the sponsors may not commercially market the drug until it has been scheduled by the DEA and labeled with the controlled substance schedule. This delay between FDA approval and DEA scheduling has no set time limit, and there is no formal deadline or requirement that a timeline for agency action be provided to patients or physicians. During this interim timeframe, patients may not access these new therapies, regardless of FDA approval. The unpredictable DEA process results in patients being denied access to important medicines that can improve, and in some cases save, their lives. Read more >
Over 560 avid Epilepsy Foundation of Colorado supporters filled the stands at Coors Field on Sunday June 2, to show their support for Epilepsy awareness and education. Madison Berg enjoyed her time on the field with Rockies' mascot, Dinger. Board member Mark Stevenson, VIP volunteers Laura Ross and Dr. Kelly Knupp, executive director Gail Pundsack, Madison and Bill Berg had a great time during the pre-game show on the field. THANK YOU to everyone!
The 2012 U.S. Olympian Trevor Barron wore an Epilepsy Foundation uniform when he got 4th place at the Kaiser Permanente Colfax Marathon on May 19 in Denver! Trevor experienced epileptic seizures from age 8 until age 13, when he had successful brain surgery. At age 19 he set a U.S. Olympic Trials record in the 20-kilometer race walk, qualifying for London where he finished 26th in the fastest Olympic time ever achieved by an American. We enjoyed having Trevor, a student at Colorado College, with us at our Strides for Epilepsy 5k in Colorado Springs last October. This wasTrevor's first marathon so he was not out to win, but accomplished his goal of being among the top 10 finishers and making a positive statement for what people with epilepsy can do. Click here to read the article that ran in the Denver Post about Trevor's accomplishment!
Greg Grunberg and Epilepsy Foundation Get Stars to Talk About It!