100 Seizures a Day
Loveland boy recognized for National Epilepsy Awareness Month
Nov 11, 2008
Brian Cox at the Jason Fleishman Summer Camp
Contact: Erin Manzanares
Tel. 303/377-9774 For Immediate Release
100 Seizures A Day
Denver, CO--November 1, 2008--When her son began having seizures, Anne Cox joined the fight to create awareness and understanding for people living with epilepsy.
At home with her blended family, Anne can always count on one sobering constant: Every day her son Bryan suffers from a seizure. "Every noise triggers a seizure for Bryan," says Anne. "A dog barking, doorbell ringing, car honking. Everything."
Bryan was first diagnosed with leukemia when he was 2 ½ years old. After successful radiation and chemotherapy treatments, Bryan relapsed. Advanced stem-cell technology gave Bryan another shot at life when he suddenly suffered from a stroke. At five years old, he began having jerks that turned into seizures. Seven years later, the cancer is gone but the seizures remain. Bryan has up to 100 seizures per day, most of them violently controlling his body for up to one minute. "To get a label like epilepsy is a scary thing," says Anne. "A lot of people don't want to hear it." Anne Cox and her family, however, are making sure everyone does.
Bryan has attended the Epilepsy Foundation’s Summer Camp, a place where kids with epilepsy can share experiences with others their own age and learn to say “I have epilepsy – but it won’t control my life”. Anne has joined support groups through the Epilepsy Foundation of Colorado to reach other people just like her who are impacted by this challenging disorder. The Cox family participates in the annual Strides for Epilepsy 5K in Denver and devotes time to educating others about epilepsy. “Bryan touches people in the community with his bravery and spirit. In fact, we were on a walk the other day and 2 different people, who I didn’t know, approached us just to say “hi” to Bryan,” says Anne. “He is very special.”
Bryan joins over 47,000 people in Colorado and 3 million Americans who live with some form of epilepsy. This brain disorder causes recurring seizures, muscle spasms or, sometimes, a loss of consciousness. “It is such a common neurological disorder, “says Anne. “It doesn’t receive the attention it is due as a major public health problem.” Bryan suffers from drop seizures which are sound induced, an uncommon trigger of seizures. Today, there is no cure for epilepsy, but there are medications, therapies and surgeries to help control seizures.
Bryan is in the 5th grade in Loveland, Colorado and looks forward to attending the Epilepsy Foundation Summer Camp in 2009.