Information and Referral
Our trained professionals provide information, referrals and support for those in need. We have brochures, videos, and other resources available. For information and referrals, please contact us at email@example.com, 303-377-9774 or toll free 1-888-378-9779.
Camps are a great place for a child to build new friendships, confidence, self-esteem, and allow the opportunity to confront limiting belief systems in a safe environment. For many parents of children with seizures, the idea of sending a child to camp can be frightening. However, camper and parent testimonials reveal the benefit of camp and the often life-changing experience this can be for a child living with epilepsy. Camp allows a child with seizures to focus on what they CAN do, through the support and encouragement of caring peers and camp staff. This is often a child’s first time away from home and it’s the goal of the Foundation to make it a safe and positive experience that will foster a child’s growth.
- The Jason Fleishman Summer Camp
Located at the YMCA of the Rockies in beautiful Estes Park, this 5-day overnight camp for youth ages 10–17 living with epilepsy provides an opportunity for youth to participate in fun and exciting activities like rock climbing, zip line, horseback riding, arts and crafts and more. To insure the safety of campers, we have a licensed medical team on-site at all times along with experienced counselors. The cost is $300 and scholarships are available. Click here to learn more or to register online.
- Frosty Fun Day
Located at Cal-Wood Education Center in convenient and beautiful Jamestown, Colorado, this day camp is an experience that connects youth and provides a fun getaway. It is for youth ages 8-12 living with epilepsy and siblings of those living with epilepsy. The activities include sledding/tubing and learning outdoor winter skills. The kids will be guided through Art Therapy which is designed to address feelings and emotions related to living with epilepsy. Click here to learn more about the Frosty Fun Day.
If you are a sibling or a youth/young adult living with epilepsy, you are between the ages of 15-21, and you have demonstrated exceptional skills and leadership capabilities in your community and school, Youth Council may be just the program for you! Youth Council members are valuable volunteers for the cause of epilepsy and the Foundation. They are given wonderful opportunities to develop important life skills, gain unique experiences, become a leader, and engage with other amazing siblings and youth who are living with epilepsy. For more information or an application, please contact Marcee Peterson firstname.lastname@example.org, 303-377-9774.
- Youth Council members participate in projects throughout the year geared towards advocacy, outreach and education about epilepsy. Here are some of their important projects and accomplishments over the past 2 years:
- The Talk About It video won the National Health Information 2010 Gold Award.
- Project Backpack is an outreach project aimed to give information and resources to the Newly Diagnosed children and parents. Children’s Hospital of Colorado has been a wonderful partner in reaching these families.
- Volunteering at Children’s Hospital of Colorado. Youth meet 1:1 with children and families in the Neurology Department to provide support and resources.
- Youth Council member, Jackie Plowshay, applied for and received a $20,000 grant two years in a row on behalf of the Epilepsy Foundation of Colorado.
- Youth Council members have been the yearly Kids Speak Up Representatives for EFCO where they are given the opportunity to visit Colorado state legislatures on Capitol Hill in Washington DC to advocate for those living with epilepsy.
- Youth Council members present as a panel to various groups and schools to educate and advocate about epilepsy.
We believe that ‘education is the key’ when it comes to epilepsy and that this happens one opportunity at a time. Epilepsy is a highly misunderstood disorder in need of education and awareness in order to allow those living with epilepsy to achieve their true potential without being stigmatized by their peers and society. Educating the schools and community and providing professionals, peers, and others with accurate information can decrease unnecessary fear and debunk myths. The positive effects of improving understanding can often decrease incidences of social isolation or bullying, improve academic support and create a more accepting and supportive environment overall for a child.
We offer several education programs geared towards improving the life of a child living with epilepsy. If you are interested in someone from the Foundation providing the trainings listed below, please contact Marcee Peterson, email@example.com, 303-377-9774.
- Take Charge of the Facts: This is training on basic seizure recognition/first aid and targets grades 4-12. It includes a PowerPoint presentation and the Take Charge of the Facts video. The brief video alone offers some great information for youth if you do not want the entire presentation.
- Seizure Training for School Personnel: This training provides school personnel with information on recognizing seizures and their impact on students as well as seizure first aid information. The training includes the Seizures in School video.
- Managing Students with Seizures: This training for School Nurses provides information, strategies and resources that equip you to better manage students with seizures. A Pediatric Neurologist and Registered Nurse lead the training and each registrant receives 3.2 CEUs. The cost is $50.
We also raise awareness and provide community education by attending school and community Health Fairs throughout the year. Our wonderful volunteers represent the Epilepsy Foundation of Colorado and they distribute general information about epilepsy.
Kids Speak Up!
Kids Speak Up! provides an opportunity for carefully selected youth ages 13-18 to go to Washington DC and meet with their elected officials on Capitol Hill. They discuss the need for epilepsy education and research towards a cure. This program is in conjunction with the Epilepsy Foundation of America’s Public Policy Institute which is an advocacy initiative where staff, volunteers, parents, and youth receive advocacy training. They are updated about the latest legislative issues related to epilepsy so they can be well prepared to discuss advocacy initiatives directly related to epilepsy at The Hill visits.
Beyond Medication - Save the Date, May 19, 2012
We are proud to offer Living Well with Epilepsy, Beyond Medication -A FREE morning seminar. On May 19, 2012, 9:00am-noon at Dave and Busters in Denver, CO. Bring the whole family to learn from the experts on topics ranging from the Ketogenic Diet, Vagus Nerve Stimulation, Epilepsy Surgery and Healthy Living courses. Space is limited so please register online or by contacting Jennifer Houston at firstname.lastname@example.org or by calling the Foundation at 303-377-9774.