Links for More Information

The inclusion of these links is for informational purposes and should not be interpreted as constituting Epilepsy Foundation of Colorado endorsement of any of the sources cited.

Commentaries by Epilepsy Foundation leaders:

Epilepsy experts call for more research into medical marijuanaMiami Herald, January 22, 2014

Opinion essay by Elson So, president of the American Epilepsy Society, describing the status and importance of clinical research

We need proof on marijuanaNew York Times, February 12, 2014

Opinion essay by Orrin Devinsky, who is conducting research on Epidiolex, and colleague Daniel Freedman, noting the lack of sound clinical data on effectiveness of CBD treatments and calling for removal of roadblocks to research


On Epidiolex:

Comes now Epidiolex: FDA approves IND studies of CBD – October 22, 2013

Article from a pro-marijuana source, but with accurate information on Epidiolex and the status of its U.S. availability. Includes comments from the head of GW Pharmaceuticals on why the company has been quiet on its work while Charlotte’s Web has seized the media spotlight.

GW Pharmaceuticals informational site on Epidiolex


On Charlotte’s Web:

Realm of Caring Foundation


News articles (latest to earliest):

Parents move to Colorado for “miracle pot” for childrenUSA Today, February 18, 2014

News article and accompanying video featuring two families who moved to Colorado for Charlotte’s Web

Colorado Springs-area mom Paige Figi on mission for medical marijuana – January 12, 2014

Article efforts by the Stanleys and Charlotte Figi’s mother to encourage legislative action in other states; also describes the Stanleys’ affiliated dispensary in California

Legalization’s opening of medical pot research is dream and nightmareDenver Post, December 15, 2013

Covers the initial efforts to document medical results of Charlotte’s Web patients, with emphasis on the need for more rigorous research

Families see Colorado as new frontier on medical marijuanaNew York Times, December 5, 2013

First major national coverage of families moving to Colorado for Charlotte’s Web

Families looking to cure epileptic children find first dose of hope with special Colorado marijuana oilColorado Springs Gazette, November 3, 2013

Article written as a new cohort of patients was just beginning to receive Charlotte’s Web; includes a description of how the medication is developed

Families of children with epilepsy moving to Colorado, drawn by success of marijuana oil Colorado Springs Gazette, October 20, 2013

Detailed coverage of the emergence of a community of Charlotte’s Web users as families began to relocate to Colorado to access the medication

Pot with a purpose: Teller County brothers’ marijuana grown for medical benefitsColorado Springs Gazette, October 4, 2013

Feature on the Stanleys and their activities

Marijuana stops child’s severe seizures – CNN, August 7, 2013

The original CNN news story coverage, with links to Sanjay Gupta’s video and others


Medical and policy reports:

Whole cannabis extract of high concentration cannabidiol may calm seizures in highly refractory pediatric epilepsies – American Epilepsy Society, December 6-10, 2013

Report by Drs. Margaret Gedde and Ed Maa on their interviews with the parents of 11 children taking Charlotte’s Web

Report of a parent survey of cannabidiol-enriched cannabis use in pediatric treatment-resistant epilepsyEpilepsy & Behavior, December 2013

Abstract of an article by Brenda E. Porter and Catherine Jacobson of Stanford University, who conducted an anonymous survey of parents (located through Facebook) of 19 children taking CBD-based medications for epilepsy

Everything you need to know about CBD – Project SAM (Smart Approaches to Marijuana), December 2013

Report by an organization that opposes marijuana legalization; it gives scientific information on CBD and calls for more research on making CBD available in medical form

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