Personally affected by tonic-clonic seizures
When were you or your family member first diagnosed, and what were your thoughts after the diagnosis? I was first diagnosed when I was 13 years old. It was very difficult when I first found out because I didn’t understand why this was happening to me and this wasn’t fair.
What is the hardest part about having epilepsy? It was very hard at the beginning, but now 13 years later, I’ve learned so much living with epilepsy. I don’t look at it has a bad thing anymore. I look at it as a great thing that I have been able to learn from. I have made so many wonderful friends.
What is one of your greatest successes despite having epilepsy? One of the many successes I’ve had is learning about the Jason Fleishman summer camp. I was able to turn my life completely around and I was also able to be a counselor at the camp, where I could help children who were scared about having epilepsy just like I was when I was when I was first diagnosed.
How do you manage your epilepsy? I manage my epilepsy by taking medicine twice a day.
What advice do you have for people who are newly diagnosed? I’d tell people not to totally give up. There is always help. The Epilepsy Foundation of Colorado has been the biggest help in my life. I am forever grateful for them.
What do you want others to know about epilepsy? It’s not always scary. And there is always an advocate to help you learn about epilepsy. Also, November is the month to wear purple and share the knowledge you do know about epilepsy.