Elizabeth Furry, Mother of Brionna
When did you become a caregiver to someone with epilepsy, and what were your thoughts after the diagnosis? Our daughter was first diagnosed at six months old with epilepsy. She was just recently diagnosed with Dravet syndrome and she is now 9 years old.
How did you prepare for life as a caregiver to someone with epilepsy? We just address it head on.
What is the hardest part about being a caregiver to someone with epilepsy? Not being able to fix my child. Not being able to help make it better.
What are some of the highlights and successes you’ve seen as a caregiver to someone with epilepsy? We celebrate the milestones, especially seizure-free days.
What advice do you have for a fellow caregiver to someone with epilepsy? Take each day one at a time. Celebrate the positives. Seek out support groups and others who can relate. But the most important thing of all is to make time for yourself.